Hoping for Help for Children with Dravet

Jul 17, 2014

Your child has been perfectly healthy up until the time of about 6 months of age.  Then the seizures begin.  They grow progressively worse.  Soon other symptoms appear.

It turns out your daughter or son has a genetic condition most people are not even aware exists.  It is called Dravet Syndrome.  We examine the challenges --and the hopes-- for treating this mysterious illness.


Nathan B. Fountain, M.D.  - Neurologist.  Professor of Neurology and Director of the F.E. Dreifuss Comprehensive Epilepsy Program at the University of Virginia.

Laura A. Jansen, M.D., Ph.D.  -  Pediatric Neurologist specializing in childhood epilepsy.   Assistant Professor of Neurology at the at the University of Virginia.

Melissa Crowder Rhoden - Staunton, Virginia parent of a child diagnosed with Dravet Syndrome. Member of Virginia Parents for Medical Marijuana.

Additional Resources:

Dravet Syndrome Foundation

Epilepsy Foundation

Epilepsy Foundation of Virginia